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Additional Resources
For those interested in accessing other useful quality of life resources, the following materials are suggested.
http://www.thoracic.org/ American Thoracic Society Web site. (This web site describes QoL instruments [and their psychometric properties] for asthma and other respiratory disorders. Indexes, contacts and reference materials are provided for the surveys listed.)
Bender BG. Measurement of quality of life in pediatric asthma clinical trials. Ann Allergy Asthma Immunol. 1996, 77, 438-445 [PubMed]
Hyland M. A brief guide to the selection of quality of life instrument. Health Qual Life Outcomes. 2003 Jul 3;1(1):24. (Full text article on PubMed offers an introductory level description of key issues when selecting QOL instruments.) [PubMed]
http://www.kluweronline.com/issn/0962-9343/contents. Kluwer Web site. (Kluwer is the publisher for the Quality of Life journal and their web site offers information, abstracts and full-text articles on QoL surveys.)
http://www.qolid.org/ The Quality of Life Instruments Database. (A European web site that permits limited free access searches for QOL instruments according to disease state, population and other queries.)
Staquet, Hays, and Fayers. Quality of Life Assessment in Clinical Trials. Methods and Practice. Oxford Medical Publishers, 1998. (A textbook that provides a comprehensive guide to data analysis, psychometrics, key issues, and decision making theory.)
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